Whether it is for business or pleasure, a long or short trip, travelling with a bleeding disorder such as hemophilia A can be stressful. However, if you prepare in advance, you should be able to travel with confidence.
Meet with your healthcare team to confirm you are in a healthy condition to travel and ask about any vaccines that are recommended based on your travel plans.
Ask your doctor for a letter that includes the following:
Description of hemophilia A symptoms
The name of the clotting factor concentrate you require during travel
Full list of infusion supplies
Medication storage requirements
Confirmation that you need to keep this medication with you during travel
Healthcare provider contact information
Clearly label your medication and supplies and pack them separately in a carry-on bag.
Ensure you have enough factor concentrate and infusion supplies for the duration of your trip, and consider the possiblility that there could be a delay in your travel plans to come home.
Confirm that there will be a refrigerator available to store your medication.
Confirm whether your factor concentrate can be stored at room temperature and for how long.
Bring your insurance details with you, including the phone number of the insurance company.
Familiarize yourself with the location of nearby hospitals along your travel route.
Bring a copy of all your important medical and contact information with you.
Consider wearing a medical alert bracelet or neck chain.
If you are comfortable doing so, inform your travel companions about your hemophilia A.
If you take the necessary steps before your trip, you will have confidence that, even in case of a bleed, you are prepared.
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